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Charity walk in Lowestoft will raise awareness of Stuart's rare condition

PUBLISHED: 15:59 03 June 2016 | UPDATED: 09:10 04 June 2016

Stuart Everett with his children Charlie and Oliver. Picture: Supplied

Stuart Everett with his children Charlie and Oliver. Picture: Supplied

Archant

The positivity shown by 35-year-old Stuart Everett, as he battles a rare condition, shows he really is 'one in a million'.

It was about 12 years ago, that the popular managing director at Sentinel Leisure Trust was diagnosed with Guillain-Barré syndrome – which affects one in every 100,000 people.

He was faced with the daunting prospect of having to learn to walk again after waking up one morning and finding himself completely paralysed.

For the past seven years, he has also been suffering with a rare neurological condition named Myasthenia Gravis (MG).

But this weekend people will come together to support him and his family, during a sponsored walk event at Waterlane Leisure Centre from 1pm – to raise funds and awareness for the Myaware charity.

About 70 people have already signed up to the family orientated event today (Saturday), where participants will walk to Oulton Broad, stopping of at Nicholas Everitts Park and proceeding back to the sports centre – finishing with a cup of tea and a slice of cake.

“It would mean so much to us and so many other families that are also effected by Myasthenia if you could give a few hours of your time on Saturday and join us in the fight to find a cure and support Myaware,” said Mr Everett’s wife of 11 years Lindsay.

“Stuart is battling a really rare condition but he is always positive and our twin boys, Charlie and Oliver, just idolise him.

“MG is a condition that is debilitating on a daily basis making the things that we take for granted such as walking, talking, swallowing and breathing a struggle.

“As the condition is so rare, the charity Myaware fund and research themselves meaning that it will probably not be my or my husband’s lifetime that a cure is found.”

This year is the charity’s 40th anniversary with this month also the awareness month of Myasthenia.

It is understood that only one in a million people are unfortunate enough to suffer with both rare conditions.

People are encouraged to attend the event this weekend, and pledge support via the Just Giving Page at www.justgiving.com/fundraising/Stuart-Everett1

■ For the full story, pick up a copy of the Lowestoft Journal.

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