Parents told to cherish remaining time with three-year-old Cohen after devastating CT scan
PUBLISHED: 08:20 12 April 2018 | UPDATED: 18:42 12 April 2018
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Cohen Messenger was born a fighter.
When he and his twin brother Ethan arrived 15 weeks premature their parents were told to expect the worse.
Against all odds both survived, but they have battled a seemingly constant stream of health problems ever since.
And earlier this year Aimee and Kirstie Messenger, from Lowestoft, were told to “cherish” the remaining time they have with three-year-old Cohen “while they still can” after a chest CT scan revealed his lungs were functioning at only 25pc capacity.
Cohen has cerebral palsy, uncontrolled epilepsy, dystonia and vocal cord palsy, he is also on oxygen 24-hours a day.
Additionally, he suffers from central apnea, a condition which causes him to stop breathing at any time and can require resuscitation day and night.
Aimee said: “It’s absolutely devastating for us. He went through so much but his lungs are so damaged he may not survive.
“Cohen is very, very vulnerable – a common cold could take him.
“The doctors can’t give us a timescale; it could be two months or two years.”
She added: “They showed us the CT scan of his lungs and it was horrendous.
“He has cysts on the bottom of both lungs – they looked like a smoker’s lungs.”
The tragic news has coincided with Ethan’s return home after a 129-day hospital stay.
Intestinal problems, again caused by the premature birth, resulted in the removal of his large intestine and left only 70cm of his small intestine.
Aimee said: “The news really made Ethan’s return bittersweet, but he is going from strength to strength now.”
Once they heard the news his parents were certain of just one thing.
“We have got to make his life jam-packed with fun things,” said Aimee. “Now is the time for making memories.
“Cohen is not going to live a long life but we want him to live a happy life.”
Now the couple are appealing to the public for help raising £5,000 to install an interactive sensory floor in Cohen’s bedroom.
Cohen will benefit greatly from the stimulation and games the floor provides.
Aimee added: “It will help take him away from the hustle and bustle of the world.”
To support Cohen and donate visit: www.gofundme.com/CohensInteractiveFloor
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