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'We will worry with every symptom': Charity push for two-year-old in rare cancer fight

PUBLISHED: 16:15 30 May 2019 | UPDATED: 16:15 30 May 2019

Jaymen Woolston has been diagnosed with neuroblastoma. PHOTO COURTESY OF WOOLSTON FAMILY

Jaymen Woolston has been diagnosed with neuroblastoma. PHOTO COURTESY OF WOOLSTON FAMILY

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A family facing a lifetime of "worry with every symptom" have launched their bid for potentially life-saving treatment for their young son.

Jaymen Woolston's family, Jordan, left, father; Louise, middle, mother and Harlow Woolston, right, sister, Oulton, Lowestoft. PICTURE: Jamie HoneywoodJaymen Woolston's family, Jordan, left, father; Louise, middle, mother and Harlow Woolston, right, sister, Oulton, Lowestoft. PICTURE: Jamie Honeywood

Jaymen Woolston faced a survival rate of less than 40pc when he was diagnosed with neuroblastoma in January, but the brave two-year-old has battled back.

After a gruelling programme of chemotherapy, radiotherapy and treatment at Addenbrooke's Hospital in Cambridge, doctors removed 95pc of his tumour in a seven-and-a-half hour operation.

Currently undergoing a spell in isolation during his recovery, the youngster now faces a "scary" 50pc chance of relapse, with his parents Jordan and Louise Woolston launching a charity bid to seek further treatment overseas.

Mr Woolston said: "We are trying to raise money for further treatments to what the NHS can offer.

Jaymen Woolston with his older sister Harlow. PHOTO COURTESY OF WOOLSTON FAMILYJaymen Woolston with his older sister Harlow. PHOTO COURTESY OF WOOLSTON FAMILY

"Although it is going as well as it can at this stage, there is a 50pc rate of relapse so there is a high chance it could come back, and some of the treatments can also cause other problems down the line.

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"Nothing is set in stone, but we have been looking at trials in America so we have options to get him to remission or to prevent it coming back. Even if he does go into remission, it is so scary.

"We will have it hanging over us for the rest of our lives. We will be worrying with every symptom."

Earlier this year, a JustGiving page was set up to support the family as they made daily trips to Cambridge.

Now, after setting up a campaign through support chairty Solving Kids' Cancer, the family will look to continue their efforts to get further treatments for Jaymen.

Mr Woolston said: "I've been looking into doing a skydive and there are some friends due to run the Lowestoft half marathon.

"The charity has made it really easy for people to donate or do their own fundraisers for Jaymen, and we have had shops and pubs get in touch to get a collection tin. Even something as simple as a cake sale can raise so much money.

Jaymen Woolston from Lowestoft was recently diagnosed with neuroblastoma. Picture: Courtesy of the Woolston familyJaymen Woolston from Lowestoft was recently diagnosed with neuroblastoma. Picture: Courtesy of the Woolston family

"We are taking it week-by-week, and the main focus has been on Jaymen rather than organising fundraisers, but we have had a really good reaction from people. Our family fun day earlier this year was overwhelming and people have been really supportive."

To donate, go to: solvingkidscancer.org.uk/campaigns/jaymen. Alternatively, text 'Jaymen' and an amount between £1-£20 to 70085 to donate.

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